Wednesday, 17 February 2010

Post Three.

I had the stitches out last week... And by hell that hurt. The Doctor had done tests on the tissue which was removed from my breast and it had no abnormalities... NO CANCER! :) SCORE!
It's still sore as fuck and my breast looks like I've had some sort zombie surgery. But the scarring will go down in time but I'm guessing the way they had to cut into it I will have some... But it will all be worth it in the end :)
Hopefully I will be able to start wearing a bra again next week which means I will have to go and get measured properly for the first time! Pretty weird not really ever knowing your real bra size. Also pretty nervous about some random lady going near my breasts.
I have an appointment to see the surgeon again at the end of March to see how I'm doing and to sort the rest of the surgeries out which I'm looking forward to as I will be able to begin to plan ahead rather than basing my life around having these operations. Last week was the first week I've been out since the operation it's great to be able to go and do stuff and see people instead of being stuck in bed. Thanks to everyone I have seen out who have been really supportive of this blog and everything. It makes this whole thing worth while and it's nice to see people willing to come together to do some good.

On this Friday 19th Feb @ 9pm on Channel 4 there is a program called Embarrassing Bodies which has an episode dedicated to Poland's syndrome. It will be featuring a male who has this syndrome so if you can check it out, record it on your sky plus or whatever.... please do so!

The website for the show you may be able to find out some more info on there, I've seen this program before some of it can be pretty graphic but it may help you if you feel you have any 'embarrassing illnesses'

So I'm starting to sort out the fund raising show I will be putting on. The name of the show will be called 'Riffs For Racks'. Through the up and coming months there will be more details to follow... A date will be set once I have a date for my final operation.

If you want to help out in anyway... venues, promotion, bands who want to play drop me an email @

Mucho Love to all


Monday, 1 February 2010

Post Two.

Firstly I would like to thank you all for all the messages and comments I have been receiving about this blog, it means allot to me. The Codeine has spun me out for the last few days and I have been in a lot of pain, but today I'm feeling allot better but I'm still house bound until the end of the week... being stuck in drives me INSANE. There is a big world outside and I want to be involved in it!

I do have to say... I'm no hero, I'm no victim... I don't play either of those parts well. Whatever shit things happen to you you have to always remember there is someone who is a zillion times worse off than you and sometimes you need to take a look around, pay attention and help them. If I come across preachy I apologise as there is nothing worse than people preaching on you to be a better person blah blah its not about that it's about being the best person YOU want to be. I wanted to share my experiences with you in the hope some good will come out of it.

My reasons behind this blog was to create awareness of this condition and to raise some money for the clinic and for the patients whom are undergoing a similar situation. I've come up with a few ideas to raise some money. Firstly I will be putting on a show, with all the money raised it will be donated to the charities and clinic in regards to Poland's syndrome as well as breast care. I'm working out all the stuff that go's along with that at the moment... If you want to help in anyway with this or if you're a band that wants to play please email me at

One show in ways I don't think its enough. It's fine me saying 'I want to help' I could put on a show raise a bunch of money then go back feeling 'satified' that I have helped in a small way. I would not get ANY satisfaction from that... The show I want to put on I want to make an annual thing so once a year we can all get together & have a good time for a good cause.

If you want to help, pay to come to the show and party!

I have my stitches and my bandages removed on Thursday which in ways I'm nervous about as One Its gonna cane Two I find out about the rest of the surgeries I will be undergoing THREE IT'S GONNA FUCKING CANE.

Four? Seeing the 70's year olds pussy again... I've been having nightmares about that shit... fingers cross shes not there.

Anyways enough of me always talking shit... until the next post... Enjoy yourselves.